Alzheimer’s Caregiving Tips
Disaster Preparedness
People with Alzheimer’s disease can be especially vulnerable during disasters such as severe weather, fires, floods, earthquakes, and other emergency situations. It is important for caregivers to have a disaster plan that includes the special needs of the person with Alzheimer’s. In general, you should prepare to meet the needs of your family for 3 to 7 days, including having supplies and backup options if you lose basic services such as water or electricity. Organizations such as the Federal Emergency Management Agency (FEMA, www.fema.gov) and the American Red Cross (www.redcross.org) provide information about making a general disaster plan.
Gather Supplies
As you assemble supplies for your family’s disaster kit, consider the needs of the person with Alzheimer’s. Be sure to store all supplies in a watertight container. The kit might contain:
- Incontinence undergarments, wipes, and lotions
- Pillow, toy, or something the person can hold onto
- Favorite snacks and high-nutrient drinks
- Physician’s name, address, and phone number
- Copies of legal, medical, insurance, and Social Security information
- Ziplock bags to hold medications and documents
- Recent photos of the person Other supplies you may need are:
- Warm clothing and sturdy shoes
- Spare eyeglasses and hearing-aid batteries
- Medications
- Flashlights and extra batteries
If You Must Leave Home
In some situations, you may decide to “ride out” a natural disaster at home. In others, you may need to move to a safer place, like a community shelter or someone’s home.
Relocation may make the person with Alzheimer’s very anxious. Be sensitive to his or her emotions. Stay close, offer your hand, or give the person reassuring hugs.
To plan for an evacuation:
- Know how to get to the nearest emergency shelters.
- If you don’t drive or driving is dangerous, arrange for someone to transport your group.
- Make sure the person with Alzheimer’s wears an ID bracelet.
- Take both general supplies and your Alzheimer’s emergency kit.
- Pack familiar, comforting items. If possible, plan to take along the household pet.
- Save emergency numbers in your cell phone, and keep it charged.
- Plan to keep neighbors, friends, and family informed about your location.
- If conditions are noisy or chaotic, try to find a quieter place.
If You Are Separated
It’s very important to stay with a person with Alzheimer’s in a disaster. Do not count on the person to stay in one place while you go to get help. However, the unexpected can happen, so it is a good idea to plan for possible separation:
- Enroll the person in the MedicAlert® + Alzheimer’s Association Safe Return® Program— an identification and support service for people who may become lost.
- Prepare for wandering. Place labels in garments to aid in identification. Keep an article of the person’s clothing in a plastic bag to help dogs find him or her.
- Identify specific neighbors or nearby family and friends who would be willing to help in a crisis. Make a plan of action with them should the person with Alzheimer’s be unattended during a crisis.
- Give someone you trust a house key and list of emergency phone numbers.
- Provide local police and emergency services with photos of the person with Alzheimer’sand copies of his or her medical documents, so they are aware of the person’s needs.
The Alzheimer’s Disease Education and Referral (ADEAR) Center is a service of the National Institute on Aging, part of the National Institutes of Health. The Center offers information and publications for families, caregivers, and professionals about Alzheimer’s disease and age-related cognitive changes.
For more caregiving tips and other resources:
• Read “Caring for a Person with Alzheimer’s Disease”: www.nia. nih.gov/alzheimers/publication/ caring-person-alzheimers-disease
• Visit www.nia.nih.gov/alzheimers/ topics/caregiving
• Call the ADEAR Center toll-free: 1-800-438-4380
